June,
2001
The following articles appeared in this month's issue of the newsletter.
Click on any of the links below, or click here
to download a hardcopy of the newsletter.
As readers of "Neuro News" may have noticed from our recent activities
and newsletters the Association is going through a restructuring
phase. Read more about these plans here.
The generosity of our friends and members of the association
know no bounds when it comes to fundraising for Nf, and we in the
Association would like to say thank you.
Our new web site is up and running, and we want to hear your
input! Click here for more.
In a story from our UK partner site, TV's Gillian Anderson ("The
X Files") opens a Nf Charity Shop in Glasgow. Read all
about it here.
Friday 8 June saw the start of a long weekend of cross border get
together for the Nf association. It was a weekend away for 45 people
at the Share Activity Centre in Co. Fermanagh. Read all about the
Respite Weekend in Lisnaskea: click
here for more.
June proved to be a busy month for all concerned with Nf activities.
The first Monday saw a number of fit Nf supporters take to the road
for the 10K Mini Marathon. Read more about the Ladies Mini Marathon
here.
Introduction of multidisciplinary teams in specialist centres for
the management of Nf, Counselling Services and other essential services
for Nf sufferers" will not happen unless ongoing pressure is
placed on Government to provide them. Read an extract from our
submission to the Department of Health Policy Document "Your
Views About Health" here.
FAS and the Health Boards provide training for people with disabilities.
Read more here.
In this month's edition of Your Questions Answered, we discuss
the Optic Glioma, which affects the nerve in the eye. For
more on what it is and what treatment is available, click here.
Every month we include a few brain teasers to test your knowledge
of Nf, the Association, and more. Click here
to see this months batch of trivia in Did You Know?
A number of people have been in touch with the association who
are interested in contacting a Pen Pal. Drop us a postcard
giving your Name, Address and age group and we will be delighted
to put you in touch with others. Note: We wish to point out that
we cannot be held responsible for the outcome of such contact. For
our address, click here.
The association would like to thank all those who responded to
the Questionnaire in our May issue. The more information
we have on sufferers and their families the more we will be able
to focus on their needs. Our aim is to lobby State Bodies for improved
services, medical care, conditions and counselling services. In
this way hopefully we can improve the lives and protect the interest
of people with Nf. We received a large number of requests for information
on particular aspects of Nf. Mary McClelland will address your questions
in future issues of Neuro News.
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