Welcome to the web page for the Irish Neurofibromatosis Association.
Here is the place to find out more about the condition, how it is
treated and much more. And if you can't find what you are looking
for, contact us here.
We are now affiliated with MyCharity.ie: click the logo to donate now!
Flora Womens Mini Marathon
The Flora Womens Mini Marathon takes place on Bank Holiday Monday 7 June 2010.
Those participating in the Flora Womens Mini Marathon, who wish to fundraise, for the Neurofibromatosis Association should contact Paddy Griffin at email@example.com or call the help line: 01 872 6338 or mobile: 087 237 3269. You will be supplied with sponsorship cards, t-shirts etc. Click here to read all details.
CYCLE Mizen to Malin 2010 and Join Our Cycling HEROS
The Magic - your dream - a tale one can relate to their grandchildren - the story begins here. The Mizen Malin Cycle Challenge will start from Mizen Head at 8am on Thursday 3rd June and finish on Sunday 6th June at Malin Head - distance 420Ml’s or 600 KLM’s. Click here to learn more and participate.
2008 European Conference in Ireland
The Neurofibromatosis Association of Ireland hosted the 13th European Neurofibromatosis Meeting, “education and information for families, health professionals and scientists”. The conference took place in Killarney, in October. Please click here to read Dr. Vincent M. Riccardi's overview of the event.
Latest News & Events
||Click here to view the Christmas 2008 edition of the Association's newsletter, Neuro News.
||Click here to read more about Joe Dononvan's upcoming climb of Europe's Highest Peak in aid of NF!
||Click here to view the NFA Ireland Press Release regarding Joe Dononvan's August climb of Europe's Highest Peak in aid of NF!
What is Nf?
the disorder is commonly referred to as Nf. Friedrich Von
Recklinghausen, a German Pathologist, first described Nf in 1882.
Since that time it has become clear not only that Nf is one of the
commoner genetic disorders, but also that there are several
distinct forms of the condition. More...
Onward and Upward!
As readers of "Neuro News" may have noticed from our recent activities
and newsletters the Association is going through a restructuring
phase. For more information on this process, take a look here.
Just Diagnosed with Nf?
you or a loved one have just been diagnosed with NF or would like
more information about the condition why not contact
the Association Family Support Person now. There is no need
to feel alone as the aim of the Association is to put peoples
minds at ease and give them the information they need in a language
they can understand. The condition is complex but with the wealth
of knowledge and medical backup available to the Association, help
is always at hand.
How can you help the organisation?
can help by joining our association and thus assisting us
in the achievement of our objectives. We welcome interested parties
from any background, be it sufferer, family member, medical practitioner,
medical specialist, geneticist or scientist. Voluntary workers
are in great demand. More...
About This Web Site...
web page is intended only as an introduction to Nf and The Neurofibromatosis
Association. If you would like more specific information please
contact us by E-mail at: firstname.lastname@example.org
or by post or telephone at the address on our contact