Welcome!
Welcome to the web page for the Irish Neurofibromatosis Association.
Here is the place to find out more about the condition, how it is
treated and much more. And if you can't find what you are looking
for, contact us here.
2008 European Conference in Ireland
The Neurofibromatosis Association of Ireland hosted the 13th European Neurofibromatosis Meeting, “education and information for families, health professionals and scientists”. The conference took place in Killarney, in October. Please click here to read Dr. Vincent M. Riccardi's overview of the event.
Latest News & Events
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Click here to view the Christmas 2008 edition of the Association's newsletter, Neuro News. |
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Click here to read more about Joe Dononvan's upcoming climb of Europe's Highest Peak in aid of NF! |
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Click here to view the NFA Ireland Press Release regarding Joe Dononvan's August climb of Europe's Highest Peak in aid of NF! |
What is Nf?
Neurofibromatosis
the disorder is commonly referred to as Nf. Friedrich Von
Recklinghausen, a German Pathologist, first described Nf in 1882.
Since that time it has become clear not only that Nf is one of the
commoner genetic disorders, but also that there are several
distinct forms of the condition. More...
Onward and Upward!
As readers of "Neuro News" may have noticed from our recent activities
and newsletters the Association is going through a restructuring
phase. For more information on this process, take a look here.
Just Diagnosed with Nf?
If
you or a loved one have just been diagnosed with NF or would like
more information about the condition why not contact
the Association Family Support Person now. There is no need
to feel alone as the aim of the Association is to put peoples
minds at ease and give them the information they need in a language
they can understand. The condition is complex but with the wealth
of knowledge and medical backup available to the Association, help
is always at hand.
How can you help the organisation?
You
can help by joining our association and thus assisting us
in the achievement of our objectives. We welcome interested parties
from any background, be it sufferer, family member, medical practitioner,
medical specialist, geneticist or scientist. Voluntary workers
are in great demand. More...
About This Web Site...
This
web page is intended only as an introduction to Nf and The Neurofibromatosis
Association. If you would like more specific information please
contact us by E-mail at: info@nfaireland.ie
or by post or telephone at the address on our contact
page.
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