Welcome!

Welcome to the web page for the Irish Neurofibromatosis Association. Here is the place to find out more about the condition, how it is treated and much more. And if you can't find what you are looking for, contact us here.

My Charity

We are now affiliated with MyCharity.ie: click the logo to donate now!

Flora Womens Mini Marathon

The Flora Womens Mini Marathon takes place on Bank Holiday Monday 7 June 2010.

Those participating in the Flora Womens Mini Marathon, who wish to fundraise, for the Neurofibromatosis Association should contact Paddy Griffin at nfaireland@eircom.net or call the help line: 01 872 6338 or mobile: 087 237 3269. You will be supplied with sponsorship cards, t-shirts etc. Click here to read all details.

CYCLE Mizen to Malin 2010 and Join Our Cycling HEROS

The Magic - your dream - a tale one can relate to their grandchildren - the story begins here. The Mizen Malin Cycle Challenge will start from Mizen Head at 8am on Thursday 3rd June and finish on Sunday 6th June at Malin Head - distance 420Ml’s or 600 KLM’s. Click here to learn more and participate.

2008 European Conference in Ireland

The Neurofibromatosis Association of Ireland hosted the 13th European Neurofibromatosis Meeting, “education and information for families, health professionals and scientists”. The conference took place in Killarney, in October. Please click here to read Dr. Vincent M. Riccardi's overview of the event.

Latest News & Events

	Click here to view the Christmas 2008 edition of the Association's newsletter, Neuro News.
	Click here to read more about Joe Dononvan's upcoming climb of Europe's Highest Peak in aid of NF!
	Click here to view the NFA Ireland Press Release regarding Joe Dononvan's August climb of Europe's Highest Peak in aid of NF!

What is Nf?

Neurofibromatosis the disorder is commonly referred to as Nf. Friedrich Von Recklinghausen, a German Pathologist, first described Nf in 1882. Since that time it has become clear not only that Nf is one of the commoner genetic disorders, but also that there are several distinct forms of the condition. More...

Onward and Upward!

As readers of "Neuro News" may have noticed from our recent activities and newsletters the Association is going through a restructuring phase. For more information on this process, take a look here.

Just Diagnosed with Nf?

If you or a loved one have just been diagnosed with NF or would like more information about the condition why not contact the Association Family Support Person now. There is no need to feel alone as the aim of the Association is to put peoples minds at ease and give them the information they need in a language they can understand. The condition is complex but with the wealth of knowledge and medical backup available to the Association, help is always at hand.

How can you help the organisation?

You can help by joining our association and thus assisting us in the achievement of our objectives. We welcome interested parties from any background, be it sufferer, family member, medical practitioner, medical specialist, geneticist or scientist. Voluntary workers are in great demand. More...

About This Web Site...

This web page is intended only as an introduction to Nf and The Neurofibromatosis Association. If you would like more specific information please contact us by E-mail at: info@nfaireland.ie or by post or telephone at the address on our contact page.