The Voice for NF Patients & Families

  • NF Patients United Online Newsletter

    With NF Mental Health Advice

    Sign up now

  • Dublin Zoo Meet-up

    Sunday, 9th June 2024 🐘 🦁

    Uniting families affected by NF

    More info & registration

  • Vhi Women's Mini Marathon

    Run for NF Ireland

    Sunday, 2nd June 2024

    Click here to register

  • 24 Hour Helpline

    Here When You Need Us

    Learn More

  • Fundraiser for NF Ireland

    Angela Roche 10k Race - Inspired by her son Xavier

    Donate today

  • Children in Hospital Ireland Information Hub

    Preparing for Your Child's Hospital Care

    Learn More

  • Cutaneous Neurofibromas

    cNFs Clinical Trial

    learn more

Support & Community

At NF Ireland we aim to be a voice for NF patients and their families. During our work we often meet people who work hard to raise awareness for NF and to fundraise so that we can continue to be a voice for NF patients and their families. We call these people our NF Hero’s

Fundraising & Awareness

To provide information on NF to patients, doctors, consultants and teachers and to promote awareness and an understanding of the problems encountered with the disorder

Neurofibromatosis (NF) is a genetic condition. This means it belongs to a group of health conditions that can be passed on in families from one generation to the next through the process of genetic inheritance. NF is caused by a mutation in one of the genes. About half of the people who have NF have no family history. In other words, it has occurred “out of the blue” with no-one else in the family being affected. This is called a spontaneous gene mutation. The other half of people will have inherited NF from their mother or father.

What is NF?

Get in touch.

NF Ireland provide a comprehensive range of services including a 24-hour Helpline, literature on the condition and information but its primary aim is to inform sufferers and their families of the disorder, supporting them and letting them know they are not alone with the condition.

Make a donation

NF Ireland relies on the donations of the many individuals and companies who give their money and time on behalf of the charity. We appreciate every bit of help we can get which helps us continue our work.