Planning a family with NF
There are a number of compelling reasons why couples planning a family may need to know if they have NF. If one or both parents have the condition, they may find it difficult to decide on whether to have children. While no one can make this decision for anyone else, it may be helpful however, to summarise some of the concerns that are often expressed.
-
A parent with NF has a 50% risk with each pregnancy to have a child with NF.
-
NF is variable and unpredictable. A parent’s case gives no indication of how severe or mild a child’s case will be, or what NF complications a child will have.
-
Genetic counselling can help couples to work through the decision-making process. Genetic counsellors do not tell couples what to do. Instead, they provide information, clarify issues, and can also explain possible alternatives. In this way, the couple is encouraged, with the support of the counsellor, to arrive at a decision that is right for them.
-
The National Genetic Centre, Our Lady’s Hospital, Crumlin, Dublin 12. Telephone: 01-409-6100
Make a donation
NF Ireland relies on the donations of the many individuals and companies who give their money and time on behalf of the charity. We appreciate every bit of help we can get which helps us continue our work.