NF Ireland Open Day 2026

Saturday 24th October 2026 | From 10:00am | Croke Park, Dublin (Celtic Suite)

We are delighted to be holding this year's NF Ireland Open Day in Croke Park. The day will bring together members of the NF community, families, healthcare professionals and guest speakers for a day of information, help and support.

We have a number of excellent speakers confirmed so far, including:

    • New Children's Hospital transition

    • The future direction of NF services

    • NF1 Clinic service update

    • NF1 Registry update

    • Possible manifestations on NF during early childhood / teen years

    • Age related issue

    • Genetics and Neurofibromatosis.

    • Reproduction options

    • Indicators of which clinic offer pre implantation screening [To be confirmed]

    • Paediatric Neurology and the neurological aspects of NF.

    • Clear guideline on when carers should expect MRI to be ordered

    • When CT/MRI / ultrasound is needed and what each can show up

    • A family story of living with NF.